Poor Jaxty Boy



















The picture on the left is when he was 2 and the one on the right was Saturday.

On Saturday we went to bed and everything was great.  I had noticed that Jaxton was getting a cold but nothing extreme.  Well at 2AM we heard Jaxt from our room really struggling to breath.  We ran cause it sounded as if he was going to throw up. When we got in his room we realized how bad it was.  Now this is not something new (I'm gonna back up a few yrs)  Jaxton started having breathing issues alittle after he turned one.  For the first year they didn't give us a nebulizer or any of the things we could do to treat his symptoms from home.  Finally an ER doctor said that it was more than likely that Jaxt had asthma but we wouldn't get an official diagnosis until he was five.  This Dr.  decided that it was silly that we didn't have things at home to help and so he helped us.  It was wonderful cause since then we have usually been able to keep everything under control without going to the ER.  We have had some moments where after trying everything at home we still had to go to the hospital.  The first time this ever happened was so scary cause we did not understand what was going on.  Each time after that we got a little more comfortable cause we were better at identifying when it was most serious and after a while we really learned how to take care of him in these moments. (back to current episode)  So on Saturday when we got to him I took him immediately to get in the shower to help him calm down.  This is usually one of the first things we do.  It makes everything so much worse when they are panicking but this time I couldn't even get him in the shower cause he was so scared.  I hurried and got his abuteral and nebulizer out and we tried to get a treatment going but he was so bad that he couldn't even get any sound out to speak to us.  We realized his chest was retracting which is a very bad sign at that point the whole family is in the hallway and running to get ready so we could run to the ER.  He was so bad that Alex wanted to be there so we decided to all go.  I don't think we have ever had that scary of an experience.  I have never not been able to calm him down.  It was horrifying.  When we got in the car I realized Payton was crying and I told him that Jaxton was going to be OK and he said to me " I heard him mom but I went back to sleep.  I shouldn't have gone back to sleep I didn't take care of him.  Maybe he wouldn't be this bad if I would have got up right when I heard him. "  Hearing Payton say these things broke my heart.  He is such a great brother and over the yrs he has been our ears in moments like these.  Payton and Jaxton share a room so Payton is usually the one who wakes us to let us know Jaxt isn't well.  I felt so bad for Payton cause he just couldn't stop crying.  Then I have my Jaxton sitting right next to him just wheezing and struggling for every breath.  When we got to the ER we really got service faster than we ever had but they could hear Jaxton the moment we walked through the doors.  The nurse picked Jaxton up and weighed him then did his stats she then picked Jaxton up and took him to one of the triage rooms.  We have never been taken to one of these rooms and literally as we are walking in the room we were surrounded by Dr.s Nurses and Respiratory therapists.  Their immediate reaction was amazing to me but also made me a little more concerned because they obviously were very concerned.  They gave him oral steroids immediately that help open everything up so he can breath.  They hooked him up to machines and the even put oxygen on him.  Now I know this sounds funny cause you would think that would be something they do every time but they don't they just usually do steroids and breathing treatments.  But this time Jaxton was so bad that his heart beat was so high cause it was trying to keep up with his breathing. They were concerned for his heart so that is why they put the oxygen on so he wouldn't have to work so hard to breath and his heart could slow down.  This was all so scary but it was comforting once we had Dr's around him helping him.  His oxygen levels were at 84% before we left home.  If you don't know that is really low. Anything under 95% they want to treat but if you go under 90%  its really scary cause it can start to cause problems with the rest of his body.  Especially his brain.  It was amazing to watch cause withing 20 min. of being there they had his oxygen back up to 96% which was a huge turn around.  It really gives you an appreciation for medical staff and medicines.  Without those steroid's he would have not turned around.   Through all these experiences its really made me realize how precious life really is.  I mean my son can go to bed with no symptoms , completely fine , and wake up a couple hrs later and be fighting for his life.  It is also amazing to me how quick he can pull back up to a safer place.   The Dr told us that he wasn't just having asthma issues he also had croup.  What stinks for Jaxton is that he can barley be getting a sick and because of his asthma it turns ugly way quick and usually stays around longer. Croup is not common among kids older than 4yrs old but Jaxt is just so vulnerable to everything.  I feel so bad for Jaxton cause not only does this usually keep him down for up to 2 weeks this yr.  He was suppose to be going to one of the biggest dance conventions in the world with his studio on Thursday.  The convention is in Las Vegas.  He is so sad about this that he is almost depressed.  He has been looking forward to this convention for a yr.  Its also really frustrating cause the convention will not reimburse us our money.  It costs allot of money for these and we don't have money to throw away like that.  I really thought they would be understanding that it was a medical problem not just someone that doesn't want to go anymore.  Oh well I am grateful that Jaxton is doing better and that's whats most important.   I am sad that Jaxton has to deal with this Asthma stuff but I know he is growing from his experiences.  In  the car today he said "why do I have to have this"  I said to him that I was sorry then he replied to me " I guess its not that bad I could have cancer.  I am glad that its just Asthma"  He is such a cute boy and really tenderhearted.  I feel so blessed to have this boy.
Here are some pictures from how little he was when he first stated getting this.



It was so cute cause when Jaxton was really little he was so good at the treatment stuff that he would quickly grab drinks from his bottle during them. 



He also slepped through everything we did for him.



This picture breaks my heart he just looks so sick

 

These two pics really show how unfazed he was by this all.

 

 

 

This picture really pulls at my heart.  It captures how sad and worried Payton was and it also show how sick Jaxt was.  Payton has always been such a great support to Jaxton when he is sick.  I love that Payton is holding Jaxtons hand to bring him comfort.

 

 

Jaxton is currently keeping his oxygen levels at a decent spot.  We just have him on bed rest.  Which is really hard for my boy that literally never stops dancing.